World Alzheimer’s Month

World Alzheimer’s month is held annually in September.

The aim is to raise awareness of the disease and in doing so, help people to understand what life is like for someone living with or those caring for someone with Alzheimer’s and Dementia.

According to Alzheimer’s Disease International: “2 out of every 3 people globally believe there is little or no understanding of Dementia in their country”. This campaign aims to change that statistic.

Alzheimer’s is a condition where the person’s brain function declines which can include memory, thinking and other mental abilities.

Alzheimer’s Research UK. Source: Dementia fact sheet December 2017; World Health Organisation

In Hampshire Libraries we want to raise awareness by staff attending specific training sessions and many have now become Dementia Friends. They can be identified by the Dementia Friends badge.

dementiafriends.org.uk

Reminiscence collection

Hampshire Libraries holds a Reminiscence Collection which are items that have been chosen to stimulate and support reminiscence and may be of particular use to carers working with people with dementia.

Memory Joggers 1940 – 1989 Entertainers – Barbara & Robin Dynes, I can remember the 1970s – Sally Hewitt, Having Fun in Grandma’s Day – Faye Gardner

Other books available to borrow

Hampshire Libraries hold books that explain about Alzheimer’s and Dementia and some are from the perspective of those suffering or caring for those with the disease. Find those books here: Books about Alzheimer’s & Dementia

There also a special collection of books called ‘Pictures to Share‘ which are fantastic books that help those with Alzheimer’s and Dementia bring back memories and to look at images that are part of daily life.

Family Life, At the Seaside, Shopping – Pictures to share Community interest company, edited by Helen Bate

Home Library Service

If you can’t get to the library due to ill-health, disability or caring responsibilities the library can come to you.

We can arrange for you to have your library books delivered to your home on a regular basis.

We offer books in standard and large print and also have a wide range of audio books in different formats. If you would like to borrow a particular title from Hampshire’s stock, we can get it for you.

This service is free.

How it works

Ask about the service at your local library, fill in the Library Service form or call HantsDirect on 0300 555 1387. After you have completed the enquiry form we will contact you by phone or email to assess your eligibility.

We deliver the service through our team of volunteers.

We will match you with someone and make them aware of what you like to read. They will visit you and exchange the items you have borrowed usually at least once every 4 weeks.

Volunteering for the Home Library Service

Or if you would like to become a volunteer who delivers and collects books, then please find out more information and apply here: Home Library Service Volunteering information

Other information

Some of our Hampshire Libraries hold Dementia Events and Drop Ins where you can receive advice and those who have Alzheimer’s and Dementia can attend a group.

You can also receive help and information through the Hampshire website by visiting the Adult Social Care Support page.

Libraries are a safe space and there are so many ways in which they can support and enhance the life of a person diagnosed and their carers.

Dementia Action Week 2019

Dementia Support Services

Hampshire Libraries are committed to supporting those living with Dementia across Hampshire.

Many of our Hampshire Library Service staff and volunteers have attended Dementia Awareness sessions – taking the opportunity to become Dementia Friends. The aim is to offer positive, Dementia friendly environments in all libraries.  Living with Dementia can create feelings of isolation and problems communicating with family, friends and carers. For many carers it can feel difficult to break through these frustrating barriers.  Hampshire County Council’s Library Service offers a range of materials and resources to borrow to help improve and stimulate discussion and memories.

We have a collection of helpful books for young children.
These are perfect to sit down and read together and start a conversation about dementia with your child and children.

Books on Prescription – Dementia Collection

This is an informative collection of titles chosen by The Reading Agency, and recommended and endorsed by health professionals.  It is designed to provide information and advice about dementia plus support for relatives and carers. The selection Includes personal stories and activities to share.

Reminiscence Collection

The collection helps to stimulate memories and past experiences. It includes posters, games and quizzes, postcards,  recorded music, smell boxes and memory boxes, jigsaws, photographs and books which can be used to stimulate and support reminiscence.

eAudioBooks

Sometimes listening to the rhythm of a voice reading a story can be relaxing in itself. Audio resources can also help if someone wakes during the night, or when attending medical appointments.

Audiobooks; Playaways

Individual books are pre-loaded onto an easy to use MP3 player about the size of a pack of cards. The user can slow down the reading pace to suit their needs.

Audiobooks; Mp3 CDs

A whole book on 1 or 2 discs that can be listened to, paused, rewound or fast forwarded as needed so that people with dementia can still enjoy the pleasure of a book.

National Talking Newspapers and Magazines

Library staff are happy to load your favourite newspapers and magazines onto your own memory stick. Over 50 audio titles are  available including, Reader’s Digest, Which?, Country Living and People’s Friend.

Quick Reads

Shorter, easy to read paperbacks by popular authors in larger clear print.

Pictures to Share Collection

Books with large simple images designed for people with dementia to help stimulate conversation between them and their families and carers.

Home Library Service

For anyone who finds it difficult to get to the library because of ill health, disability or caring responsibilities. We carefully match customers with local volunteers who are DBS checked, recruited and trained by library staff. Each month these volunteers will select and deliver library items based on your preferences.
Many of our Hampshire Library Service staff and volunteers have attended Dementia Awareness sessions and are experienced in talking with people who have dementia. Please do ask for more information about any of the services and resources listed here and other services we provide such as the Good Neighbour scheme. Read our Home Library Service blog for more!

Dementia Booklist

This year we also put together a booklist to support those living with dementia in some way. These books range from life-stories to information books on dementia and what it is.


Dementia from the inside: a doctor’s personal journey of hope
by Dr. Jennifer Bute  with Louise Morse

Cover

Dr Jennifer Bute, FRCGP, is a distinguished former General Practitioner. In 2009 she was diagnosed with early-onset dementia, and has since learned valuable ways of coping and helping others with the condition. Her primary conviction is that living with faith in Jesus means there is joy, even in dementia. But what does it feel like to have dementia, and what can help? Jennifer believes that her dementia is an opportunity as well as a challenge. When she resigned as a GP, she resolved to explore what could be done to slow the progress of dementia, and to help people living with it.


Somebody I used to know
by Wendy Mitchell with Anna Wharton
Cover

When Wendy Mitchell was diagnosed with dementia at the age of 58, she had to say goodbye to the woman she once was. Her career in the NHS, her ability to drive, cook and run – the various shades of her independence – were suddenly gone. Yet Wendy was determined not to give in. She was, and still is, propelled by a need to live in the moment, never knowing which version of herself might surface tomorrow. In this phenomenal memoir, Wendy grapples with questions most of us have never had to consider. What do you value when loss of memory reframes what you have, how you have lived and what you stand to lose? What happens when you can no longer recognise your own daughters, or even, on the foggiest of days, yourself?


When someone you love has dementia
by Susan Elliot-Wright

Cover

For individual carers without enough support, having a loved one with dementia often remains challenging. This book looks at practicalities and relationships, including: Defining Alzheimer’s and other dementia; Diagnosis; After diagnosis; planning for the future; Medications to help with symptoms such as memory problems, wandering, and aggressive behaviour; Other therapies such as music therapy; Practicalities: coping with strange behaviour, confusion, memory problems. Outside help and services and how to access them; Later stages of dementia; issues to consider such as residential care, financial arrangements, wills and living wills; Coping with being a carer

Try the eBook


What dementia teaches us about love
by Nicci Gerrard
Cover

What is it to be oneself, and what is it to lose one’s self. Who are we when we are not ourselves, and where do we go? This is a book about dementia – not a personal account, but an exploration, structured around this radically-slowed death. Full of people’s stories, both sad and optimistic, it is a journey into the dusk and then the darkness – and then out on to the other side, where, once someone is dead, a life can be seen whole again.


A pocket guide to understanding Alzheimer’s disease and other dementias
by Dr. James Warner and Dr. Nori Graham

Cover

If you or a loved one are worried about Alzheimer’s disease or other types of dementia, this pocket guide will help you to better understand the conditions, and how they are diagnosed and treated. Written by leading dementia experts, this book provides clear and concise information on: symptoms; diagnosis and treatments; getting help and support; tips for people living with dementia; advice for carers.


Will I still be me? : finding a continuing sense of self in the lived experience of dementia
by Christine Bryden
Cover

Christine Bryden was diagnosed with dementia in 1995, but her experiences do not reflect the mainstream discourse of loss of self while living with dementia. In this book she explains why people with dementia have a meaningful and continuing sense of self and calls for a different understanding of dementia that results in greater inclusion.


Yoga for dementia: a guide for people with dementia, their families and caregivers
by Tania Plahay

Cover

Proven to enhance well being, posture, breathing and sleep, and reduce anxiety and agitation, this programme shows how yoga can be adapted to benefit people with dementia. Based on the findings of a pilot therapeutic yoga programme for people with dementia in care homes, this book offers substantial yoga sequences, breathing exercises, meditations and mindfulness exercises for improving symptoms associated with dementia. It offers an innovative reminiscence Yoga approach, which uses sounds, music, guided imagery and familiar actions to stimulate memories. The book also includes case studies which show the many benefits of yoga for people with dementia, and describes the ways that each yoga exercise can be adapted for people of different abilities.


The dementia diaries: a novel in cartoons
by Matthew Synman

Cover

Brie, Fred, Sarah, and Sam tell you what it’s really like to care for a relative who has dementia. Funny, moving and honest, their illustrated diary entries will completely alter your understanding of dementia. This book also contains practical tips and activities for young people who have a relative with the illness.


Reducing the symptoms of Alzheimer’s disease and other dementias : a guide to personal cognitive rehabilitation techniques
by Jackie Pool
Cover

Practical and innovative, this book provides guidance for people with dementia, their families and carers. Comprehensive myth-busting information on nutrition, stress, communication, sleep and cognitive rehabilitation techniques will allow readers to build a personalised self-care plan to reduce dementia symptoms and improve quality of life.


Better brain food : eat to cheat dementia and cognitive decline
by Ngaire Hobbin, recipes by Michelle Crawford

Cover

In the UK 850,000 people suffer from dementia, and it is on the rise; on average we are living 20 years longer than our grandparents, increasing the likelihood that we will develop dementia at some stage in our lives. With lifelines increasing, looking after our brains is more important than ever and in recent years, a lot of research has been undertaken so we can understand what food and lifestyle changes help to promote brain health and the slow decline of dementia. In this book, dietitian Ngaire Hobbins explains that in her experience, many elderly patients’ cognitive decline could have been mitigated if they had eaten better 3 or 5 years prior.


If you would like support or more information about Dementia or Alzheimer’s, Dementia UK and Alzheimer’s Society offer support and information.

Dealing with Dementia

Changes can always be difficult to deal with, but when someone you love starts to change their behaviour and may not always remember your name it can be scary and bewildering, especially for young children. Sharing books about other people in similar situations can make it easier to understand and help develop coping strategies.


book cover

My Grandpa  – Marta Altes

A look at old age through the eyes of a young bear who adores his grandfather.
Age: 4+


book cover

Mile-High Apple Pie  – Laura Langston and Lindsey Gardiner

The story of a little girl whose Grandma has Alzheimer’s disease. Told in a sensitive way, the tale explains how family life is affected by this illness.
Age: 5+


book cover

The Forever Whale – Sarah Lean

Hannah’s Grandad has Alzheimer’s and he’s always forgetting things. He keeps trying to tell Hannah a story about a whale, and it seems really important, but it’s all jumbled up. Then Grandad has a stroke and can’t remember anything, not even Hannah. It’s like he’s lost inside himself. Determined to get Grandad back, Hannah sets out to make a film that will remind him of his life.
Age: 9+


book cover

My Little Grandmother Often Forgets – Reeve Lindbergh

A simple rhyming story to explain to children the symptoms of Alzheimer’s and other dementias.
Age: 4+


book cover

Pearl – Sally Murphy

Pearl’s whole world is changing because her grandmother has Alzheimer’s.  When her grandmother dies Pearl finds a way to cope by writing a poem that she reads out at the funeral.
Age: 7+


book cover

Really and Truly – Emilie Rivard and Anne-Claire Delisle

This gentle book explores dementia and its effects in a positive and hopeful manner.  Ideal for helping parents to discuss an often distressing situation.
Age: 5+


book cover

Grandma – Jessica Shepherd

This book is written like a diary and shows what happens when a grandparent has to go into a care home.
Age: 5+


Useful Organisation

Alzheimer’s Society
UK care and research: charity for people with dementia, their families and carers.

Dementia and Alzheimer’s

Changes can always be difficult to deal with, but when someone you love starts to change their behaviour and may not always remember your name it can be scary and bewildering, especially for young children. Sharing books about other people in similar situations can make it easier to understand and help develop coping strategies.


My Grandpa
by Marta Altes

A look at old age through the eyes of a young bear who adores his grandfather.
Age: 4+


Mile-High Apple Pie
by Laura Langston and Lindsey Gardiner

The story of a little girl whose Grandma has Alzheimer’s disease. Told in a sensitive way, the tale explains how family life is affected by this illness.
Age: 5+


The Forever Whale
by Sarah Lean

Hannah’s Grandad has Alzheimer’s and he’s always forgetting things. He keeps trying to tell Hannah a story about a whale, and it seems really important, but it’s all jumbled up. Then Grandad has a stroke and can’t remember anything, not even Hannah. It’s like he’s lost inside himself. Determined to get Grandad back, Hannah sets out to make a film that will remind him of his life.
Age: 9+


My Little Grandmother Often Forgets
by Reeve Lindbergh

A simple rhyming story to explain to children the symptoms of Alzheimer’s and other dementias.
Age: 4+


Pearl
by Sally Murphy

Pearl’s whole world is changing because her grandmother has Alzheimer’s.  When her grandmother dies Pearl finds a way to cope by writing a poem that she reads out at the funeral.
Age: 7+


Really and Truly
by Emilie Rivard and Anne-Claire Delisle

This gentle book explores dementia and its effects in a positive and hopeful manner.  Ideal for helping parents to discuss an often distressing situation.
Age: 5+


Grandma
by Jessica Shepherd

This book is written like a diary and shows what happens when a grandparent has to go into a care home.
Age: 5+

Image result for the tide welsh

The tide 
by Clare Helen Welsh

Grandad doesn’t remember things like he used to. But I love him as much as I always have. And I know that he loves me. A story about families, laughter, and how we can help a loved one with dementia live well.
Age: 3+


Useful Organisation

Alzheimer’s Society
UK care and research: charity for people with dementia, their families and carers.

The Wilderness by Samantha Harvey

About the book

It’s Jake’s birthday. He has lost his wife, his son is in prison and he is about to lose his past. Jake has Alzheimer’s. As the disease takes hold of him, the key events of his life shift, and what until recently seemed solid fact melts into surreal imaginings. Is his daughter alive or long dead? And why exactly is his son in prison? There was a cherry tree once, and a yellow dress, but what do they mean? Is there anything he’ll be able to salvage from the wreckage? From the first sentence to the last, The Wilderness holds us in its grip. This is writing of extraordinary power and beauty.

Reviewed by Stubbington Bookends Reading Group:

Mixed reactions to this book from group members. All found it difficult to get into and some didn’t ever get into it. Some questions are answered and some disappear in the fog, which we imagine is what it is like to have Alzheimer’s.

Star rating: **

Read the book

Request to borrow a reading group set